DMDEmpower
Assessing the empowering capabilities of people living with Parkinson’s disease in the digital health era.
Parkinson’s disease is a long-term condition that requires people to take an active role in managing their health. Digital health technologies, such as wearable devices, apps, or online tools, can help people living with chronic diseases feel more in control of their health, stay informed and improve their self-confidence and independence. However, not everyone benefits from these technologies equally. Personal, social, and environmental factors like age, symptom severity, digital skills, access to digital technologies, or support from caregivers or healthcare professionals can influence how useful these technologies are in everyday life.
This new study explores how people with Parkinson’s disease use digital technologies to feel in control of their health and the factors that supports or hinders them in doing so. By focusing on the experience, expectations and priorities of people with Parkinson’s disease we aim to understand what matters most to them when it comes to using current or future digital health technologies to feel more in control of their health and care. The stories and preferences will ensure that digital health technologies are more useful, meaningful and relevant. The inputs will guide our research, ensuring that developed solutions reflect what people with Parkinson’s disease find valuable and practical in everyday life.
About the study
Locations
L-4365 Esch-sur-Alzette
Contact
Ready to take part?
If you are diagnosed with Parkinson’s disease, you can join this study by clicking the button. This will take you directly to our questionnaire.
Who can participate?
Eligible participants
DMDEmpower is recruiting people with Parkinson’s disease living in Luxembourg and the Greater Region. No prior experience with digital health technologies is needed.
To be eligible for this study, participants must be:
- 18 years and above at the time of inclusion.
- Diagnosed with Parkinson’s diseases and residing in Luxembourg or the Greater Region.
- Have full capacity to consent.
Exclusion criteria
You may not be eligible for this study if you:
- Do not have full capacity to consent.
Not sure about eligibility?
The study team will review each case individually to determine eligibility. If you are unsure whether you are eligible, do not hesitate to contact us.
What will participants do?
This study consists of two phases and participants can take part in one or both phases: Phase 1 is completed and we are currently recruiting for phase 2. You can participate in phase 2 even if you did not participate in phase 1.
Phase 1 (closed)
During Phase 1 participants will have a 45-60-min one-on-one conversation (in-person at the Parkinson Research Clinic, or via video call) in English, German or French. The objective of this phase is to talk about your experience and expectations with digital health technologies and what makes it easier or harder to use to actively engage in your care.
Phase 2 (currently recruiting)
This is a 15-30-min online or paper survey available in English, German, or French. You will rate aspects of patient empowerment you consider most important for digital health technologies to support.
Your participation will help us:
- Identify and rank aspects of empowerment valued by people with Parkinson’s disease when using digital health technologies.
- Understand how the personal circumstances of people with Parkinson’s disease and disease-related challenges shape these priorities.
- Gain insights into barriers and enablers of empowerment in digital health among people with Parkinson’s disease.
Contact & location
Uni.lu – Belval Campus
2 avenue de l’Université
L-4365 Esch-sur-Alzette
University research site hosting the LCSB and Faculty of Science, Technology and Medicine, dedicated to translational and computational research.
Remote visit
Principal Investigator
Principal investigator
Prof. Dr Jochen Klucken
Dr Jochen Klucken, Head of the Digital Medicine group, Luxembourg Centre for Systems Biomedicine (LCSB)/University of Luxembourg (UL); Centre Hospitalier de Luxembourg (CHL)
Study team
Participating institutions
Funded by
dHealthPD FNR PEARL
Want to learn more about the study?
Visit the study website for full study details.
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